Why is it important to have a Seizure Response Plan?

  • Developing your own seizure response plan emphasizes the importance of teamwork and the central roles that you (the person with seizures and your family) play in seizure management.
  • Your success in managing epilepsy will depend on being prepared to tackle whatever comes your way – from understanding your epilepsy, maintaining seizure control, responding to seizures, and managing your safety.
  • Seizure Response Plans can help you organize your seizure information and have it available when and where you need it. It can help you know what to do to prevent an emergency or tell others what to do in emergency situations. You can also adapt these plans to different situations in your life.
  • By helping you be prepared, seizures or the fear of seizures won’t prevent you from participating and enjoying your life to the fullest.

How do I make a Seizure Response Plan?

  1. Visit the Tool Box and use these forms to help you develop your seizure plan.
    • My Seizure Plan
    • My Health Care Team
    • My Seizure Medicines
    • Tips for Seizure Observation
    • Instructions for Using Seizure Calendars
    • Seizures Calendars
      • My Seizure Event Diary
      • My Monthly Seizure Calendar
    • My To Do List
    • Questions For My Health Care Team
  2. Print out the My Seizure Response Plan and follow along as you work through each section. If you are missing information or don’t know what to do, write it down on your To Do List and Questions For My Health Care Team. Take these forms with you to your next office visit and ask for help to complete this.
  3. If you are a parent of a child with epilepsy, you can use the  Seizure Action Plan Seizure Action Plan specific to schools.
  4. To create an electronic plan, visit My Epilepsy Diary and click on My Reports and then the tab titled My Seizure Plan. Some of the fields will require you to fill in new information. Other parts will be filled with data already entered into your seizure diary. You can edit or change this as you complete your seizure plan.
  5. Review your completed form with your doctor or nurse. Make sure that you have the information correct, especially the information on types of seizures and emergencies, doses of medicines, and how to respond to seizures and possible emergencies.
  6. After everyone has signed off on the plan, make copies!
    • Keep one with you at all times – in your purse, pocket or wallet, or backpack.
    • Put one in a central place in your home.
    • Give one to people who are with you most frequently (if you feel comfortable with this).
    • If you are a parent of a child with seizures, give one to the school nurse so appropriate people will know what to do if your child has a seizure. Make sure that your child knows you are doing this and is part of the process.
    • If you or your child goes to camp or other programs where she may spend a lot of time, give a copy to the camp nurse, counselor, or person in charge. Again, make sure your child knows you are doing this and is part of the process.
  7. Review the plan with your health care team and family on a regular basis – at least once a year or if seizures or your treatment changes.
  8. If this is your first time creating a seizure plan, read through the step-by-step help to develop your plan.
  9. Now, let’s get started!